We are the Huntington's Disease Society of America, Arizona Chapter, the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today and hope for tomorrow for people with Huntington's disease and their families.
The HDSA Mission:
-To help individuals affected by Huntington's disease and their families through support and services.
-To educate both the public and health care professionals about Huntington's disease.
-To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter, will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information and advocating for ourselves and our loved ones.
Contact us today to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an Educational Event near you!
Phoenix Resource Coordinator:
Phone: (602) 222-9312
Tucson Resource Coordinator:
Phone: (520) 306-1624
Director, Center for Pediatric Movement Disorders/Co-director, Neurogenetics Program:
Michael Kruer, MD
Phoenix Children's Hospital
Phone: (602) 933-0970
PO Box 8152
Glendale, AZ 85312
Pacific South West Region
(Arizona, California, Nevada, Utah)
Regional Development Manager:
Pacific Southwest Regional Development Manager
Huntington’s Disease Society of America
P. O. Box 2078
San Marcos, CA 92079
Phone: (760) 566-5161
Officers of the Board
Sarah Miller - President
Joe Benson - VP
Phill Fox - Treasurer
Lindsay Schroeder - Secretary
Evelynn Garcia - Tucson Representative
Monica Collins - Tucson Representative
Dara Jacobs - Education