• 2024 Amaryllis

    The amaryllis is a symbol of strength and determination for the HD community. Place your orders starting October 18th!

  • HDSA Annual Report

    We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

  • JOIN POWER HD

    By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

  • HD SYMPTOMS AND TREATMENT IMPACT SURVEY

    This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

  • SAVE THE DATE!

    Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

  • HDSA Publishes 2023 Year In Review Magazine

    Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

  • 2024 Team Hope Walk - Phoenix

    SATURDAY, MARCH. 16TH @ 4PM
    DESERT BREEZE PARK
    650 NORTH DESERT BREEZE BLVD. EAST
    CHANDLER, ARIZONA

  • Annual HDSA Convention Registration is Now Open!

    Join us for the 39th Annual HDSA Convention in Spokane, Washington, May 30- June 1, 2024

  • THE MARKER: 2023 HDSA RESEARCH REPORT

    In 2023, HDSA supported fantastic Huntington’s disease science, shared research news with the community, and amplified family voices in drug development. The latest issue of The Marker is now available!

  • FIND HDSA RESOURCES NEAR YOU

    HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

  • HDSA SOCIAL WORKERS

    HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

  • HDSA SUPPORT GROUPS

    HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

  • #LetsTalkAboutHD with Jennifer Perks

  • #LetsTalkAboutHD with Charise King